For over three decades, I have made a living asking the questions. As a radio broadcaster and manager, I prided myself on having the “full picture.” I believed I understood the varieties of the human condition, and I certainly considered myself a “good ally” to the disability community. I did lots of interviews, I helped develop content, I used the correct terminology, and I slept well believing I was on the “right side of history”.
Then, two years ago, the script changed.
Becoming a lower-limb amputee didn’t just alter how I navigate the physical world. It exposed my own profound blind spots. In some ways, it shattered the illusion of my allyship and replaced it with a stark reality that no amount of research could have prepared me for.
Before, when I walked into a studio or a meeting room, my authority was taken as read. But as I returned to work, I started to find my capability was being questioned or debated before I’ve even reached the microphone.
But today, on International Day of People with Disability (IDPWD), I am reminded that my learning curve has only just begun.
I am taking part in a panel discussion here at work at today, sitting alongside colleagues who live with a range of different disabilities. Listening to their stories, I know my experience—visible, physical, obvious—is just one fragment of a much larger picture.
I have had to learn that disability is not a monolith.
There are 5.5 million Australians living with disability. That is more than 1 in 5 of us. But if you are picturing a wheelchair, you are missing the vast majority of the story.
90% of disabilities are invisible. They are neurodivergence, chronic pain, sensory impairments, and psychosocial conditions.
It is not just about birth. While many disabilities are congenital, the majority are acquired. It is the only minority group that anyone can join at any moment—a car accident, a stroke, a fall, or simply the process of ageing.
By treating this as a “niche” issue in our newsrooms, we are ignoring 20 per cent of our audience. We are missing stories of innovation, resilience, and systemic failure because we are too busy looking for tragedy. Or “inspiration porn”, as disability advocate Stella Young oce described it. referring to stories about people with disability who are “amazing”.
Do you need to have a disability to report on it well?
No. You don’t.
You don’t need to be an amputee to understand the importance of a ramp, just as you don’t need to be a politician to report on parliament. Good journalism is about empathy, rigour, and curiosity, not just lived experience.
But let me tell you: it helps.
Having lived experience acts as a filter. It helps you distinguish between a “heartwarming” fluff piece and a story about systemic neglect. It stops you from asking “What happened to you?” and starts you asking “Why isn’t this building accessible?” It shifts the focus from pity to rights.
So, as I join this panel later today, I have rewritten my own editorial guidelines.
If you are an able-bodied journalist, your job today is to listen—really listen—without the filter of sympathy. And if you live with disability, speak up. Your perspective is not a “special interest”; it is the vital, missing piece of the national conversation.
For me, and others, this is where the story begins.
At first, I thought it was just part of the aging process. Now I realise its because I spend too much time in front a screen. And today I watched a LOT of television.
It all started off with the Sun-Todays early in the morning, then a bit of “Meet The Press” or was it Laurie’s Interview? Insiders were okay today. I always like it when they have Fran on. A few hours of The Simpsons followed.
And then this afternoon I got caught up watching A-Pac, the new channel which has been set up for “public debate” or something like that.
With an interest in this kind of thing, I’ve found myself watching it a fair bit. They have lots of Senate Estimates stuff, lots of hours of Question Time, and such. The most amusing thing I’ve seen so far is New Zealand Parliament Question Time which, oddly enough, is quite interesting amusing for its honesty, unlike the very “staged” Question Time we have.
Today they had hours and hours of people giving submissions on Bob Brown’s bill about whether or not we should have a plebiscite for a republic. Bob was there, as was Cory Bernardi, the South Australian Liberal who got into trouble for something a while back, a Liberal bloke from Victoria fresh out of student politics (though quite smart and incisive in his line of questioning) and Doug Cameron.
Appearing before them were the likes of Major General Michael Keating on behalf of the Australian Republican Movement and David Flint on behalf of Australians for a Constitutional Monarchy. There were a bunch of other players with interesting things to say, though none of their names springs to mind, unfortunately.
It was interesting to watch how the politicians interacted with the people giving evidence. For example, one bloke made a comment about a suggested plebiscite question and you could see Bob Brown’s eyes light up. He kept coming back to that question throughout the rest of the proceedings, so it obviously had some effect.
There was also a lovely exchange between David Flint and Bob Brown when they compared notes about the friendship circles in which they travelled. “We obviously travel in quite different circles”, Flint commented when Brown observed that almost everyone he meets thinks Australia should become a republic soonish.
Overwhelmingly they thought it was wrong – in fact one said, “a bit sick” – to wait for the Queen to die before re-considering this question, as it’s about our destiny, not our relationship with a particular person.
Overwhelmingly I got the impression, if there’s to be a plebiscite or whatever at the next election, it will probably be something a little more than “do you think we should be a republic”. Quite a few people kept coming back to the 1977 national anthem/song competition which gave people a non-binding choice. Then, a few years later legislation made it all happen.
So, my guess is they’ll ask us something along the lines of “do you want a republic?” (yes/no), followed by “if so, do you want a) direct elect pres b) parliament elect etc”, and then there’ll be some sort of question or statement about how nothing is binding until there’s a further referendum where you’ll get to vote again.
That’s my reading of the evidence, and the response is given, anyhoo.
Of all those on the panel, only one, Cory Bernardi was happy with the current arrangements, being of the “if it ain’t broke” school of thought.
So that’s my Sunday… watching TV… getting four eyes.
It’s another beautiful Spring day in Sydney and, once again, I’ve woken up with a bad case of the sniffles. Although I live on the first floor of my apartment block, which means I’m literally in the treetops when I wake up in the morning, the downside of this is regular annual cases of hay fever. I don’t know why but this year the hay fever’s been much worse than in previous years. In fact, I had a day off work this week, hardly able to get out of bed. Thankfully, I’m feeling much better now, though the sniffles remain.
My Tree
Although I haven’t actually made any firm plans for the weekend, aside from a fairly vague idea of wandering down the road for the Surry Hills Festival (which has just firmed up thanks to a mid-blog telephone call from The Other Andrew) that’s probably not a bad thing. In the midst of this terrible hay fever, I’ve had a reasonably busy week with a night of theatre, dinner with friends at a nearby restaurant and another work-related event that took me to the forty-first floor of Governor Macquarie Tower which enjoys spectacular views.
The dinner on Thursday night with my friend Colin (and two of his friends) was definitely a highlight of the week, as we attended one of the “closing down dinners” at RQ Restaurant, a terrific Asian restaurant on Crown Street. Although I can’t remember exactly how many courses we had (it was one of those fixed-priced degustation menus), I do remember it was an evening of great food and conversation. As they have a daughter doing the HSC at the moment, it was a great night out for John and Catherine, who had also been to the night noodle markets the previous night, which Tom from Tom’s Place also enjoyed this week (even if they had run out of red wine!).
Such was not the case last night when Colin and I went to The Ensemble Theatre for the opening night of Noelene Brown in “Glorious”, a play about the American socialite and singer, Florence Foster Jenkins. Vaguely familiar with the true-life story of Jenkins, and as a big fan of Noelene Brown, I was really curious to see this play. As noted in Wikipedia…
From her recordings, it is apparent that Jenkins had little sense of pitch and rhythm and was barely capable of sustaining a note. Her accompanist can be heard making adjustments to compensate for her tempo variations and rhythmic mistakes. Her dubious diction, especially in foreign language songs, is also noteworthy. Nonetheless, she became tremendously popular in her unconventional way. Her audiences apparently loved her for the amusement she provided rather than her musical ability. Critics often described her work in a backhanded way that may have served to pique public curiosity. Despite her patent lack of ability, Jenkins was firmly convinced of her greatness. She compared herself favourably to the renowned sopranos Frieda Hempel and Luisa Tetrazzini, and dismissed the laughter which often came from the audience during her performances as coming from her rivals consumed by “professional jealousy.” She was aware of her critics, however, saying “People may say I can’t sing, but no one can ever say I didn’t sing.”
Wikipedia
Ensemble Theatre
The most memorable part of last night’s play, along with some good one-liners, was how Noelene Brown managed to sing the entire night intentionally off-key. There was not one occasion when she actually hit a note, reminding me of my own, often disastrous attempts at singing. Very funny. Although not a hugely memorable play, it was an evening of great fun.
And it was especially fun to see a play set in the bizarre world of 1940s New York social life, as I’ve become a little bit interested in New York this week. Aside from the hay fever I’ve had, the other bug I’ve caught this week is the “travel bug”. I went to my tax agent on Monday (and Friday to sign the paperwork) and if all goes to plan, I should receive a fairly healthy return within a few weeks. With the Australian dollar so strong at the moment, I made a mental promise to myself that if the return was indeed a healthy one, I would set aside some money to travel to three places I’ve always longed to visit: Stockholm, Paris and New York.
Looking down from the window, it’s hard to tell if the snow is masking green fields or the frozen expanse of the Stockholm Archipelago. I flew in during the dark, and my memories of flying here in the summer months are far too distant to lean on now—those long, golden Nordic days feel like a different lifetime.
Normally, I’m a dedicated aisle seat person. As an amputee, it just makes life infinitely easier for getting to the bathroom or having that extra bit of floor space to stretch out my leg. I know that for the people sitting next to me, it sometimes means they have to wait a beat longer to shuffle past while I navigate the space, but it’s a trade-off I usually have to make. However, today the woman at check-in offered me a window seat in the fourth row. I paused for a second, but contemplating the rare opportunity to see the Swedish landscape in proper daylight, I immediately said yes. There is something grounding about seeing the world from 30,000 feet, especially when you’re heading toward a city / area as visually stunning as Stockholm.
Checking in at an airport is a much more formal “process” for me these days. I usually request wheelchair support to help navigate the sheer scale of modern terminals. The reality of the situation is that it’s often a incredibly long walk to get to the plane, and in the case of today’s flight, ours was parked at one of the furthest possible gates. I had a really good chat with the young woman pushing the wheelchair. She told me she had been to Finland many times because her father is Finnish, but she hadn’t actually done much additional travel outside of that. She looked quite young, perhaps just starting out in her career, but she was incredibly professional and kind.
Back home in Sydney, the process of going through airport security is usually quite fast. The attendants there instantly notice I have a prosthetic, and we have a silent understanding of how the screening will go. But being in a much colder climate and wearing long pants, it wasn’t instantly obvious to the staff here that I had a missing leg or that I was wearing a replacement. When they asked me if I could take my shoes off, I had to explain that I couldn’t—at least not easily. She understood why immediately, and the situation was handled with total grace. Interestingly, I had a woman perform the pat-down today. In Australia, that process is almost always strictly divided by gender, so it was a small but notable cultural difference in how security is managed here.
The other big transport difference I noticed today was on the Metro. I got onto an extremely busy carriage where every single seat was taken. Almost instantly, a younger woman identified my need for a seat and offered hers to me. It was a moment of genuine kindness that felt remarkably seamless. It stands in such stark contrast to my experiences in Sydney. Even when I’m wearing shorts and my prosthetic is clearly visible, I often have to be the one to speak up and ask for a seat on a crowded train.
I’ve thought about why that is, and I think the problem in Sydney is that most people are simply so absorbed by their phones that they don’t even bother to look up and see who is standing in front of them. People in Stockholm have mobiles, of course, but they seem far less “consumed” by them than people back home. In Sydney, it’s now quite common to literally have someone run into you while they’re walking on the street or even crossing a busy road because they won’t take their eyes off the screen. I haven’t seen that happen once since I arrived in Stockholm. There seems to be a different level of presence here.
The flight from Stockholm to London was a very pleasant two and a half hours—a perfect duration that doesn’t leave you feeling entirely drained. I’m treating this part of the trip as an important “greatest hits” side quest. The main agenda items are taking in the ABBA Voyage show—which I’ve heard is a technical marvel—and seeing a new modern stage version of Yes, Prime Minister.
It’s been almost 20 years since my last visit to London, and I was pleasantly surprised by how much easier the journey from Heathrow into the city has become. I caught the Piccadilly line and it was remarkably straightforward; I emerged from the Underground and arrived almost immediately next to my hotel, The President at Russell Square. Before I arrived, I’d read various reports about the “mountain” of stairs I might need to navigate at certain London stations. As an amputee, stairs—especially wet or crowded ones—are always a bit of a mental hurdle. I was bracing myself for a struggle, but thankfully the lifts were all in working order, making the transition from the platform to the street completely painless.
Tonight, I had dinner with a dear friend and former colleague from Sydney who now works at BBC Radio London. She was kind enough to give me a guided tour of her workplace, and as a long-time ABC person, I couldn’t help but notice the striking similarities between the two organisations. From the specific types of broadcast equipment to the general “ordered chaos” of the workplace configuration, it felt like home. It turns out there are also a huge number of Australians working in the BBC newsroom; it seems we really do get everywhere.
It was a funny sensation to be in an environment that was simultaneously familiar and entirely different. As I entered the building and waited for my friend, I played a little game in my head, trying to work out what different people’s roles were based on their appearance and how they carried themselves—comparing them to the archetypes I know so well from the ABC. The most significant difference I noticed, however, was the cultural diversity. The BBC felt much more representative of a global city, with many more “brown faces” among the staff than I usually see in our Australian newsrooms.
I also had a bit of a fan moment, taking photographs in various locations around the building that I recognised from the brilliant comedy show W1A. For anyone who hasn’t seen it, it’s a pitch-perfect mockumentary that satirises the BBC’s own corporate culture—the endless meetings about nothing, the management jargon, and the absurdly over-complicated “solutions” to simple problems. Standing in the actual lobby where those scenes were filmed was a highlight.
Over an excellent meal and a great bottle of wine, we spent several hours catching up on the massive changes in our respective lives. It’s been nearly ten years since she made the move to London, and while we stay in touch on social media, I realised it’s probably been five years since we last sat across from each other in person. We were the very last people to leave the restaurant, lost in conversation.
She was also an excellent ally to have when it came time to negotiate the public transport for the trip back. It had started to rain, which made the London streets pretty slippery, and some of the stairs we encountered were quite steep. My prosthetic can be a bit unforgiving on slick surfaces, so having someone there who understands the rhythm of the city was a huge help. Thankfully, all the lifts were working at the stations we needed for the return leg too.
After several days of bracing against the cold and wearing heavy long pants, it felt like a total luxury to finally put on my short pyjamas and hop into bed. Being an amputee means I have to keep a very close eye on the skin health of both my “good” leg and my stump. The combination of the biting outdoor cold and the dry, blasting central heating indoors had caused my skin to become quite itchy and parched. I applied some moisturiser, and the relief was instant. I think for the rest of this trip, I’ll try to wear shorts whenever the indoor environment allows for it, just to give my skin a bit of a break.
I thought I was going to die the morning after the last time I drank starköl (strong beer). I had a fantastic time the night before at the now-closed, but legendary Stockholm disco, Lino. But the morning after I had the worst hang-over I’ve ever had in my life.
At this point, I should tell you Swedish beer comes in three standard strengths: the aforementioned starköl (strong), mellaöl (medium, pretty standard full strength beer in Australia) and lättöl (low alcohol) which is readily sold in supermarkets.
In contrast to supermarket sales, the sale of alcohol is heavily regulated in Sweden with a state-run bottleshop, Systembolaget. It is said the Swedes like a drink or two, and so the state has regulated alcohol sales with just one chain of shops and with heavily regulated opening hours.
I, too, am trying to regulate my alcohol intake on this trip. Shock! Horror! In contrast to my usual lushness, today was the first day on this trip that I’ve had any alcohol, and I decided to restrict myself to only two beers. But which to choose? As I wandered around Systembolaget late this afternoon I found myself spoiled for choice. In the end I settled on a beer called “7,2”. Like “Spray & Wipe”, “7,2” tells you exactly what you’re buying as that’s also the alcohol volume. The label goes on to tell me it was made with Malt & Corn, so it will be interesting to see how it tastes.
Swedish beer
I think the couple I saw on the bus ealier may also have been to Systembolaget today. I can’t remember exactly what bus stop they got on at, but from the moment they were on the bus I was completely transfixed. In fact, I completely missed my own stop because I became so enthralled in what was going on.
They were an older couple. I heard him say he was 70 years old. They certainly both looked it, or maybe a little more. They also both reeked of booze. She also had a single cigarette in her hand, as she made her way onto the bus. Like Moses and The Red Sea, she cut a swathe through the commuters as she came on fag in hand and with an apparently much-needed walking frame. She plonked herself down next to a young woman, while he plonked himself down next to a young man, though far apart.
Ice skating at Medborgarplatsen
While the people they sat next to tried to remain oblivious to the drunken ramblings coming from their mouths, another young man who was standing close by began to engage the older man in a conversation. “Är du bra?” he asked at first. They chatted for a while, and I since it was a simple enough conversation (they spoke pretty slowly) I was able to listen in and follow most of what was said. It wasn’t that interesting, to be honest, but it was interesting enough for me to be able to follow, and to become completely distracted by it, and miss my stop altogether.
In addition to my bottle-shop visit, since arriving in my apartment yesterday, I’ve also done a bit of supermarket shopping. I’m lucky enough to be in the vicinity of three supermarkets, as well as a few nearby convenience stores. It was a bit of a struggle for a while as I tried to make sense of some of the different products, and then translate them into Australian dollars to work out if they were good value or not. The navel oranges I bought were an excellent price, whereas the mandarins I didn’t purchase were outrageously expensive. I also struggled a bit with the enormous variety of fruit juices, as I struggled to work out what all of the different names and varieties were. I was looking for some peppermint tea, but interestingly enough, it wasn’t to be found, and so I settled for a Strawberry and Raspberry infusion. But in the midst of it, I found some good things, including my favourite purchase which was a block of a really tasty, mild, creamy cheese called Carolineost. I’ve had it before on many occasions and it never fails to disappoint.
Hopefully I haven’t bored you with my shopping list, but for me it’s relatively important to settle down for a regularish routine, as I contemplate the next two months of travel.
Gamla Stan, the old town in Stockholm
Also, it’s Day 3 of this holiday and I’m yet to really relax. I’ve been a little tired and stressed (and pretty grumpy for a few months now, so I haven’t really chilled out yet. But the beautiful sunny days (though cold nights) are helping with the relaxation. Having a place to call “home” without the stress of moving has really helped. Hopefully the “holiday” will really kick in this weekend with Melodifestivalen. So apologies if you’ve been wishing and hoping for some amazing tales and excitement. I’m on the road for two months, and I’m sure they’ll eventuate. Who knows what will happen after I finish this starkol…
Susannah Place is a series of four terraces located at The Rocks in Sydney which were built in 1844 by an Irish family. The houses were kept in the family for many years, and were mostly rented out to working class families.
Throughout most of the period of European settlement, The Rocks began to develop a “colourful reptuation”, which continued throughout the nineteenth century, culminating in the notorious “Push Gangs” which dominated the area in the 1890s.
In 1900, the outbreak of bubonic plague, resulting in 303 diagnosed cases and 103 deaths, further enhanced the less than salubrious reputation of The Rocks. In an effort to “clean up” the area, due to the outbreak of plague, many buildings were demolished by the newly established Sydney Harbour Trust. Although the plague was given as the official reason for these demolitions, many have argued, there were other pro-development reasons as well, such as the planned construction of the Sydney Harbour Bridge. These houses were were not, apparently, affected by the plague of 1900 and so were not demolished. In fact, I understand they were inhabited up until the 1980s.
Further modernisation of the area continued until, in the 1970s, in protest at further demolition, and at the eviction of long-term Housing Commission residents, Green Bans were established, ensuring the preservation of many historic buildings, such as Susannah Place.
Inside The Shop
Sydney Rock archaeological dig
Susannah Place
Susannah Place
Susannah Place
Susannah Place
Susannah Place copper
Susannah Place
Sydney Rocks archaeological dig remains
The terraces are now owned by the Historic Houses Trust of NSW which has maintained them. Inside the houses, which have been restored, but not renovated, there is period furniture, representing the style of the late 19th and early 20th centuries. Even in In the backyard, there was an outside toilet and a copper washing basin, much like the one I remember bathing in as a child.
It’s a reflection, I guess of how things have changed: what was once slum accommodation is now a tourist attraction. On a video we watched inside one of the houses, one of the former residents quipped that when she lived there in the ealry 60s it was hard to get a credit account at a department store if “The Rocks” was your address, but by the 80s, people would almost ask you for an autograph if you told them you lived in the area!
I took a rebel stand on my outfit for this year’s “Andrew Olle Media Lecture”. Though I’ve been attending the lecture for over twenty years (only missing one, the year I lived in Western Australia) dressing for it is pretty simple.
As a man, all you need to worry about is a tuxedo and a bow-tie. In contrast, a friend/colleague mentioned on Facebook earlier in the week, she was struggling with her outfit, while trying to maintain her carbon footprint. “Do I what I’ve done”, I told her, adding “only two outfits in twenty years, and the only change has been a few different bow-ties”.
For this year’s lecture, I splurged on some new socks and jocks, but when it came to the bow-tie, I ummed and ahhed. I looked through my collection of bow-ties, which ranged from the traditional black, to blue, green, red and rainbow (worn in the run up to the Same Sex Marriage Survey) and I wasn’t impressed. “They’re all so boring”, I thought to myself.
In the end, I decided to go sans bow-tie, and what an awesome decision that was! You should never have to wear a tie in Sydney during November!!Peter Fitzsimons delivered a terrific lecture focusing on the many changes he hadsseen in journalism over the last thirty years, in which he name-checked some AWESOME journalists. Andrew Olle Scholar, Danny Tran delivered an awesome speech about press freedom.I had a lovely chat with two of Andrew Olle’s children, Nina and Sam. I’ve known Nina very well over many years, and actually gave her one of her first jobs. I didn’t know Sam as well, though he’d worked previously with one of my friends many years ago, who he remembered as “The ABBA Guy”. When this all started, the kids, Nina, Sam and Nick were young adults.
Some of my awesome colleagues.
Not wearing a tie was a really wonderful thing. I felt much more relaxed than in previous years. A couple of friends agreed it was terrific not to have to spend the night relaxing and not having to worry about “networking”. Oh yeah, and this year I was seated outside of the “main camera view”, so I didn’t have to worry about looking too much like a “lush” by drinking during the televised part of the speech!!
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I’m an old nurse, years spent with people missing bits and pieces, who were disabled in some way but it wasn’t until my daughter was in a wheelchair that I realized how poorly designed the world is for those with disabilities who need a wheelchair. I always speak up about it, wherever I am, complaining loudly about the fact that I can’t even turn my daughter’s wheelchair around in their store. I may also deliberately bang into things, because I can be a pain in the ass:)
I think the majority of people in the world don’t like to think about people with disabilities because of the old saying, “there but for the grace of god go I”. They don’t want to be reminded that bad things happen, that they can happen at any time, and that those bad things can permanently change your life. It’s a part of denial maybe.
My daughter has an intellectual disability as well and can’t talk. People think she’s stupid. She’s not and she can read people so well. She’s also one of the most empathetic people I know.
I had a patient who could no longer talk due to cancer surgery and people ignored her or treated like she had an intellectual disability. She did not and I could only imagine how isolating it was for her.
I could go on, this obviously touched a nerve, but I’ll stop now. Thank you for reminding people to listen and to see people with disabilities.
These are great comments Pixie, thank you. One of the weird and unexpected things about becoming someone with a physical disability, is that I’m sometimes assumed to be a person with other disabilities, mostly cognitive. It’s actually happened to me at work, where I had one person, in particular, who started speaking to me much more clearly and loudly. I have spoken to other people who are amputees, and they’ve told me it happens to them. I’ve also had a few experiences, when i was in a wheelchair, where people in shops have looked over the top of my head. I was in a chemist once, with a carer, where it happened, where I had to say to the person, “Hey it’s my down here. I’m the one with the cash, and actually, my carer speaks English as a second language!!”
Dear James,
It was a pleasure meeting you and fellow Vikings at the Maritime Museum.
Thank you for forwarding me your hoard of interviews. During my lengthy rehab I developed an aversion to hearing tales of shipwreck, crip-porn, if you’ll forgive me. It is similar to when my wife chats with her fellow ICU nurses: detailed bloody gore, a cacophony of horror. An elevated form of the elderly lovingly describing their hideous procedures.
What I haven’t forsaken is clear journalistic writing; you are notably a master of the trade/skill/art. Yours is an arresting, enabling voice penetrating the fog of empathy, the non-listening hearing of people focused only on forming kind replies.
Being a reader, I treasure witty authorship without envy. My young tutor moonlighting at Gotham Writers Workshop astutely assessed my essays as strings of anecdotes. Alison Espach’s recent third novel ‘The Wedding People’ has since sold a million-and-a-half copies. I digress.
I’ve felt like singing the Nordic sea shanty “it’s not where you start, it’s where you finish; It’s not where you come from, it’s where you’re going to.” Although that is incorrect, a sailor knows setting off is leaving land behind, the voyage is all; a destination the end of our journey.
Instead of relating details of my life-altering event, I’ve toyed with: ‘Fell of the piano. Making love. Steinway and Sons have a lot to answer for.’ I do not mean to trivialise those with PTSD.
My challenge is the swells and troughs of fatigue barnacled to livid experience, needing a good lie down in every port.
The energising theme of your interviews correlates with the PDCN concept that members are ordinary people.
I’ve enjoyed your storytelling immensely.
Dear Wayne, it was great meeting you also and sharing your obvious passion for words. Thankyou also for your comment about the tone of the interviews. In all of these stories you have to, at some point asked “what happened”, but really only when it’s relevant to the rest of the story. For example, I’ve spoken to a man who lost his leg in a shark attack while surfing, and he went back surfing a couple of years later. Virtually everyone I’ve spoken to has talked about the transformative impact of this on their lives, and not only physically, but emotionally and intellectually. And that’s why I’ve called it The Limb Shift, as a nod to the idea of the mind shift. Anyway, thank you, and hope to meet you again.
I’m an old nurse, years spent with people missing bits and pieces, who were disabled in some way but it wasn’t until my daughter was in a wheelchair that I realized how poorly designed the world is for those with disabilities who need a wheelchair. I always speak up about it, wherever I am, complaining loudly about the fact that I can’t even turn my daughter’s wheelchair around in their store. I may also deliberately bang into things, because I can be a pain in the ass:)
I think the majority of people in the world don’t like to think about people with disabilities because of the old saying, “there but for the grace of god go I”. They don’t want to be reminded that bad things happen, that they can happen at any time, and that those bad things can permanently change your life. It’s a part of denial maybe.
My daughter has an intellectual disability as well and can’t talk. People think she’s stupid. She’s not and she can read people so well. She’s also one of the most empathetic people I know.
I had a patient who could no longer talk due to cancer surgery and people ignored her or treated like she had an intellectual disability. She did not and I could only imagine how isolating it was for her.
I could go on, this obviously touched a nerve, but I’ll stop now. Thank you for reminding people to listen and to see people with disabilities.
These are great comments Pixie, thank you. One of the weird and unexpected things about becoming someone with a physical disability, is that I’m sometimes assumed to be a person with other disabilities, mostly cognitive. It’s actually happened to me at work, where I had one person, in particular, who started speaking to me much more clearly and loudly. I have spoken to other people who are amputees, and they’ve told me it happens to them. I’ve also had a few experiences, when i was in a wheelchair, where people in shops have looked over the top of my head. I was in a chemist once, with a carer, where it happened, where I had to say to the person, “Hey it’s my down here. I’m the one with the cash, and actually, my carer speaks English as a second language!!”
Dear James,
It was a pleasure meeting you and fellow Vikings at the Maritime Museum.
Thank you for forwarding me your hoard of interviews. During my lengthy rehab I developed an aversion to hearing tales of shipwreck, crip-porn, if you’ll forgive me. It is similar to when my wife chats with her fellow ICU nurses: detailed bloody gore, a cacophony of horror. An elevated form of the elderly lovingly describing their hideous procedures.
What I haven’t forsaken is clear journalistic writing; you are notably a master of the trade/skill/art. Yours is an arresting, enabling voice penetrating the fog of empathy, the non-listening hearing of people focused only on forming kind replies.
Being a reader, I treasure witty authorship without envy. My young tutor moonlighting at Gotham Writers Workshop astutely assessed my essays as strings of anecdotes. Alison Espach’s recent third novel ‘The Wedding People’ has since sold a million-and-a-half copies. I digress.
I’ve felt like singing the Nordic sea shanty “it’s not where you start, it’s where you finish; It’s not where you come from, it’s where you’re going to.” Although that is incorrect, a sailor knows setting off is leaving land behind, the voyage is all; a destination the end of our journey.
Instead of relating details of my life-altering event, I’ve toyed with: ‘Fell of the piano. Making love. Steinway and Sons have a lot to answer for.’ I do not mean to trivialise those with PTSD.
My challenge is the swells and troughs of fatigue barnacled to livid experience, needing a good lie down in every port.
The energising theme of your interviews correlates with the PDCN concept that members are ordinary people.
I’ve enjoyed your storytelling immensely.
Dear Wayne, it was great meeting you also and sharing your obvious passion for words. Thankyou also for your comment about the tone of the interviews. In all of these stories you have to, at some point asked “what happened”, but really only when it’s relevant to the rest of the story. For example, I’ve spoken to a man who lost his leg in a shark attack while surfing, and he went back surfing a couple of years later. Virtually everyone I’ve spoken to has talked about the transformative impact of this on their lives, and not only physically, but emotionally and intellectually. And that’s why I’ve called it The Limb Shift, as a nod to the idea of the mind shift. Anyway, thank you, and hope to meet you again.