I went to the opening tonight of a terrific exhibition – Joonba, Junba, Juju – currently on show at the University of Technology, Sydney.The exhibition, which is a joint effort between arts centres in the Kimberley, focuses on dance and the artefacts or props used in dance, like spears, boards, and masks, as well as videos and photographs.The opening night of the exhibition had several different joonba (an East Kimberley word for corroborree) and juju.
I recorded a brief report for the team at ABC Kimberley (Broome) which included Chris Griffiths from Waringarri Aboriginal Arts and Gija artist, Phyllis Thomas. They spoke about the importance of sharing traditions both within their own communities, as well as other communities around Australia.
“Well, well, isn’t that a happy face!” began the email from h2, who comments from time to time on this blog.
It was such a lovely surprise to receive the email which alerted me to a video clip on the website of the Swedish newspaper, Expressen with yours truly front and centre. My friend Graeme can also be seen in this image.
For over three decades, I have made a living asking the questions. As a radio broadcaster and manager, I prided myself on having the “full picture.” I believed I understood the varieties of the human condition, and I certainly considered myself a “good ally” to the disability community. I did lots of interviews, I helped develop content, I used the correct terminology, and I slept well believing I was on the “right side of history”.
Then, two years ago, the script changed.
Becoming a lower-limb amputee didn’t just alter how I navigate the physical world. It exposed my own profound blind spots. In some ways, it shattered the illusion of my allyship and replaced it with a stark reality that no amount of research could have prepared me for.
Before, when I walked into a studio or a meeting room, my authority was taken as read. But as I returned to work, I started to find my capability was being questioned or debated before I’ve even reached the microphone.
But today, on International Day of People with Disability (IDPWD), I am reminded that my learning curve has only just begun.
I am taking part in a panel discussion here at work at today, sitting alongside colleagues who live with a range of different disabilities. Listening to their stories, I know my experience—visible, physical, obvious—is just one fragment of a much larger picture.
I have had to learn that disability is not a monolith.
There are 5.5 million Australians living with disability. That is more than 1 in 5 of us. But if you are picturing a wheelchair, you are missing the vast majority of the story.
90% of disabilities are invisible. They are neurodivergence, chronic pain, sensory impairments, and psychosocial conditions.
It is not just about birth. While many disabilities are congenital, the majority are acquired. It is the only minority group that anyone can join at any moment—a car accident, a stroke, a fall, or simply the process of ageing.
By treating this as a “niche” issue in our newsrooms, we are ignoring 20 per cent of our audience. We are missing stories of innovation, resilience, and systemic failure because we are too busy looking for tragedy. Or “inspiration porn”, as disability advocate Stella Young oce described it. referring to stories about people with disability who are “amazing”.
Do you need to have a disability to report on it well?
No. You don’t.
You don’t need to be an amputee to understand the importance of a ramp, just as you don’t need to be a politician to report on parliament. Good journalism is about empathy, rigour, and curiosity, not just lived experience.
But let me tell you: it helps.
Having lived experience acts as a filter. It helps you distinguish between a “heartwarming” fluff piece and a story about systemic neglect. It stops you from asking “What happened to you?” and starts you asking “Why isn’t this building accessible?” It shifts the focus from pity to rights.
So, as I join this panel later today, I have rewritten my own editorial guidelines.
If you are an able-bodied journalist, your job today is to listen—really listen—without the filter of sympathy. And if you live with disability, speak up. Your perspective is not a “special interest”; it is the vital, missing piece of the national conversation.
For me, and others, this is where the story begins.
“I woke up and thought for half a second of taking a sickie”, a bloke at work said to me as we took the lift together this morning. I knew exactly what he meant because I had the same feelings an hour or so earlier. However, I have a reasonably strong work ethic, and far too much on at the moment to even think about having a day at home.
“It took me an hour to get to work” he told me, complaining about the sluggishness of the road system. “We don’t cope well with the rain in Sydney”, I suggested.
And we don’t. I had to go looking for an umbrella this morning and all I could find was a busted one which I had to hold open myself. It’s my “big gay umbrella” as I like to call it, a reference to the rainbow flag design. All of my other umbrellas were in my office at work, as that’s generally what happens in Sydney. Generally, it’s raining in the morning, so you take your umbrella to work, and then you leave it there, because it’s generally dry by the afternoon. But there are times of the year – like now – where it just keeps raining and raining.
I like the rain at night. In fact, I love the rain at night. I’ll often sleep with the window slightly open so I can take in the smells and slight chill of the rain at night, as well as the sounds. I almost feel like I’m back in the country again. But when it comes to daytime, ugh.
And you can see it around town in the ways in which people cope with the rain. You see a lot of broken down umbrellas when it rains in Sydney. Others will jump from cover to cover, as the idea of owning an umbrella almost seems foreign. There was one bloke on the bus this morning whose “rain strategy” was a baseball cap.
There was a bright moment in the otherwise glum day, however, as I caught up with Cellobella who has been in Sydney for the blogger’s conference. “There were so many amazing stories” she told me, of the people who had bared their souls after years of domestic abuse or had recovered from a serious illness. We both agreed our stories about weather and pop music pale into comparison. Still, we love doing it.
It’s been a take-away pizza night for me and a bit of television watching. I’m a little congested at the moment – I think it’s a bit of hayfever – so I’m feeling a little sluggish myself. Or maybe it’s the combination of the rain and a rather amazing full moon?
This is Myra Demetriou, 90 years old, and refusing to leave her home. She lives in Sydney in public housing with “million dollar views”. She opened up her home for a couple of houes this morning to encourage awareness about the campaign to stop the building in which she lives from being pulled down.
If you’ve ever crossed the Sydney Harbour Bridge, and looked over to the Sydney Opera House, there’s a good chance you’ve also seen the Sirius Building. Let’s not beat around the bush, it’s ugly. It’s a classic example of architectural brutalism.
Despite its ugliness, the building has been home to a number of people for around forty years. Many have been there since the 1970s, when the NSW Government approved developments in Miller’s Point which forced people out of existing public housing. The Sirius Building was the replacement. And now, forty years later, the NSW Government wants to move those people on again. Or should I say, “has moved those people on”, because there’s just Myra (and I think one other resident) refusing to leave.
This morning, for a couple of hours, the group campaigning to keep the building did their best to “humanise” the story of Myra and the many other people who have lived in the building. Amidst a strong campaign in the media that “people in public housing shouldn’t have million dollar views”, it was awesome to meet Myra. It was an absolute privilege to be invited into her home. “Do you mind if I take a photograph?”, I asked her. “Of me?”, she said with a surprised voice. “So long as you put it on Facebook and tell everyone about this”, she added.
Also speaking this morning was the building’s architect, Tao Gofers who located the building’s construction within the context of 1970s green bans, the activist work of Jack Mundy and the women of Kelly’s Bush.
Sirius Building Architect – Tao Gofers
Like this:
LikeLoading…
Related
2 Comments
Hi James, I’m the Education Coordinator for UTS Gallery. I’ve created a link to you interview posted here on our education resource for Joonba Junba Juju and would like to use the image of the plane with handles above in my post on Mowanjum Art Centre. Is that OK and shall I make the credit ‘Photo James O’brien”?
Hi James, I’m the Education Coordinator for UTS Gallery. I’ve created a link to you interview posted here on our education resource for Joonba Junba Juju and would like to use the image of the plane with handles above in my post on Mowanjum Art Centre. Is that OK and shall I make the credit ‘Photo James O’brien”?
Hi Alice
No problem at all. Glad my post is of some value/interest. Terrific exhibition and evening, by the way.
James